Grantmakers › District of Columbia
Global Genes
Washington, DC · EIN 26-3331487. Reported 67 grants totalling $774,416 to 59 organizations across tax years 2021-2024, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For Global Genes, by its IRS classification it raises and distributes funds for diseases & disorders (NTEE G12).
- How spread out its giving is. 59 distinct organizations, with 7% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 6% of one year's grantees are funded again the next, across 3 year-to-year transitions. That is below the 57% median for grantmaking charities, and well below the 67% private foundations manage. A list that turns over this much is one a newcomer can realistically join.
How big are its grants?
The median reported grant is $9,000. Half of what it reported fell between $7,500 and $15,000; the smallest was $5,100 and the largest $58,000. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| Global Pediatric Mds Initiative Inc | Albany, NY | $58,000 | 1 | 1 | 2021 |
| Team Telomere Inc | Coeur D Alene, ID | $31,100 | 3 | 2 | 2023 |
| Phelan Mcdermid Syndrome Foundation | Osprey, FL | $29,000 | 2 | 2 | 2023 |
| Angioma Alliance | Charlottesville, VA | $23,600 | 2 | 2 | 2023 |
| Akari Foundation | San Antonio, TX | $23,000 | 2 | 1 | 2021 |
| Angelman Syndrome Foundation Inc | Aurora, IL | $22,500 | 2 | 2 | 2023 |
| Dreamsickle Kids Foundation | Las Vegas, NV | $22,500 | 2 | 2 | 2023 |
| Foundation for Sarcoidosis Research | Chicago, IL | $22,500 | 2 | 2 | 2022 |
| Beautiful You Mrkh Foundation | Silver Spring, MD | $15,000 | 1 | 1 | 2023 |
| Bleeding Disorders Alliance Illinoi S | Chicago, IL | $15,000 | 1 | 1 | 2022 |
| Cardio Facio Cutaneous International Inc | Largo, FL | $15,000 | 1 | 1 | 2021 |
| Coalition for Usher Syndrome Research | Westford, MA | $15,000 | 1 | 1 | 2023 |
| Combinedbrain Inc | Brentwood, TN | $15,000 | 1 | 1 | 2022 |
| Ecd Global Alliance Inc | Deridder, LA | $15,000 | 1 | 1 | 2023 |
| Helping Hands for Gand Inc | Huntsville, AL | $15,000 | 1 | 1 | 2022 |
| Lymphangiomatosis & Gorhams Disease Alliance Inc | Saint Petersburg, FL | $15,000 | 1 | 1 | 2023 |
| Our Odyssey Inc | Natick, MA | $15,000 | 1 | 1 | 2023 |
| Progressive Familial Intrahepatic Cholestasis Advocacy and Resource | Clay City, KY | $15,000 | 1 | 1 | 2022 |
| SCN2A Asia Pacific | Allison Park, PA | $15,000 | 1 | 1 | 2022 |
| Sickle Cell Texas Marc Thomas Foundation | Austin, TX | $15,000 | 1 | 1 | 2021 |
| The Marfan Foundation Inc | Prt Washingtn, NY | $15,000 | 1 | 1 | 2023 |
| Uplifting Athletes Inc | Doylestown, PA | $15,000 | 1 | 1 | 2021 |
| Cute Syndrome Foundation Inc | Ozark, MO | $14,973 | 1 | 1 | 2023 |
| Sickle Cell Disease Association of Illinois | Chicago, IL | $14,955 | 1 | 1 | 2021 |
| Myhre Syndrome Foundation | Keller, TX | $14,865 | 1 | 1 | 2022 |
| New England Hemophilia Association Inc | Dedham, MA | $14,179 | 1 | 1 | 2023 |
| Raymond a Wood Foundation Inc | Ocean City, MD | $13,921 | 1 | 1 | 2022 |
| Flok Health | Montclair, NJ | $13,000 | 1 | 1 | 2021 |
| Aidan Jack Seeger Foundation Inc | Brooklyn, NY | $12,200 | 1 | 1 | 2021 |
| Congenital Hyperinsulinism International | Glen Ridge, NJ | $11,137 | 1 | 1 | 2022 |
| Bleeding Disorders Alliance of Illinois | Chicago, IL | $10,000 | 1 | 1 | 2021 |
| Cystic Fibrosis Research Institute | Palo Alto, CA | $10,000 | 1 | 1 | 2022 |
| Allo Hope Foundation | Tuscaloosa, AL | $9,000 | 1 | 1 | 2024 |
| Lhon Collective | San Diego, CA | $9,000 | 1 | 1 | 2024 |
| National Foundation for Ectodermal Dysplasias | Fairview Hts, IL | $9,000 | 1 | 1 | 2024 |
| Oxalosis and Hyperoxaluria Foundation | New Paltz, NY | $9,000 | 1 | 1 | 2024 |
| Pediatric Brain Tumor Foundation of the United States Inc | Winston Salem, NC | $9,000 | 1 | 1 | 2024 |
| Sumaira Foundation | Somerville, MA | $9,000 | 1 | 1 | 2024 |
| Hereditary Neuropathy Foundation Inc | New York, NY | $8,600 | 1 | 1 | 2023 |
| Immune Deficiency Foundation | Hanover, MD | $8,600 | 1 | 1 | 2023 |
| NR2F1 Foundation | Royal Oak, MI | $8,600 | 1 | 1 | 2023 |
| RUNX1 Foundation | Santa Barbara, CA | $8,600 | 1 | 1 | 2023 |
| Youngtimers Inc | Newport Beach, CA | $8,276 | 1 | 1 | 2022 |
| Alaafia Women | Milwaukee, WI | $7,500 | 1 | 1 | 2022 |
| DDX3X Foundation | Wilmington, DE | $7,500 | 1 | 1 | 2021 |
| Dup 15Q Alliance | Matthews, NC | $7,500 | 1 | 1 | 2021 |
| E We Foundation | Huntsville, AL | $7,500 | 1 | 1 | 2021 |
| Global Foundation for Peroxisomal Disorders | Tulsa, OK | $7,500 | 1 | 1 | 2022 |
| Indo US Organization for Rare Diseases | Herndon, VA | $7,500 | 1 | 1 | 2022 |
| Prader-Willi Syndrome Association | Brandon, FL | $7,500 | 1 | 1 | 2022 |
| Rarekc Foundation | Overland Park, KS | $7,500 | 1 | 1 | 2021 |
| United Mitochondrial Disease Foundation Inc | Pittsburgh, PA | $7,500 | 1 | 1 | 2021 |
| Cure Jm Foundation | Leesburg, VA | $6,750 | 1 | 1 | 2024 |
| Fibrous Dysplasia Foundation Inc | Bethesda, MD | $6,560 | 1 | 1 | 2022 |
| Charcot-Marie-Tooth Association | Glenolden, PA | $5,100 | 1 | 1 | 2023 |
| Coffin-Siris Syndrome Foundation | Kirkland, WA | $5,100 | 1 | 1 | 2023 |
| National Ataxia Foundation Inc | Minneapolis, MN | $5,100 | 1 | 1 | 2023 |
| Necrotizing Enterocolitis Society | Davis, CA | $5,100 | 1 | 1 | 2023 |
| Ybrp Inc | New Rochelle, NY | $5,100 | 1 | 1 | 2023 |
6 of 59 (10%) received money in more than one year over the 4 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What the money was for
Taken verbatim from the purpose column of its filings, largest first. This is the closest thing to a statement of what it funds, in its own words.
- Angioma Alliance
2021 RARE HEALTH EQUITY IMPACT GRANT - Lhon Collective
MENTAL HEALTH IMPACT GRANT
What kind of organizations it funds
By each recipient's own IRS classification, for the 51 of 59 recipients we could match to a registered organization. These are assigned categories, not our guesses -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2021 | 18 | $251,155 | $12,600 |
| 2022 | 20 | $221,259 | $10,568 |
| 2023 | 22 | $241,252 | $11,389 |
| 2024 | 7 | $60,750 | $9,000 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
14% of its giving went to organizations in New York. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
Down to the city
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are the strongest signal available that two funders have overlapping priorities -- and a funder already backing your peers is a far warmer prospect than one that merely lists your cause.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $9,000 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in New York.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
Related guides
Where these numbers come from
Everything above is taken from Global Genes's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 4 returns (tax years 2021-2024). Nothing here is scraped, inferred or estimated.
On its most recent return it told the IRS it made grants to 7 section 501(c)(3) organizations and 0 other organizations. That is the filer's own count for one year; the totals above cover every year we hold.
Address of record on the latest return: 1012 14TH Street Nw Suite 500, Washington, DC, 20005.
EIN 26-3331487 · See the original filings on ProPublica · How we build this
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